Friday, August 24, 2012

our week at OHSU -



Surgery day! We arrive at the hospital at 5:45am, and cheeked in. Get Shawn to his  holding room in short stay  so we hurried up so we could wait, repeat the med list, birthday day and name, a million times, and get poked with lots of needles for an i.v. sight, a backup i.v. sight and excreta
                At 8:30 The anesthesiologist came in to give a run down and it kinda hit "hey this is happening!!!" I don’t know about Shawn but that’s when I started to get a little nervous, maybe not nervous, but anxious. Next to visit was one of the surgery nurses to give a run down and answer questions. We have gone over everything so many times we gave her the run down and had no questions. The only thing that was changed was the surgeon’s decision the to open Shawn up the old way (one long incision from the bottom of the sternum and down for 8 inches) rather than do the operation laparoscopically (two  4 inch incisions one over the kidney and one over the new home for the kidney and two small 1-2 inch incissons) the change was made because Shawn’s tinny body mass couldn’t support all the cuts and as they heal they will tug on each other and not heal properly.
                On the surgical team we had a surgeon the remove the kidney, his resident and the resident’s intern, the surgeon to put the kidney in its new home, his resident and the resident’s intern, and the surgeon who hooked the kidney back up to the bladder, and yes his resident and his resident’s intern. Not to mention the nursing staff involved in all of this.  In total around 20-25 people.  
                So somewhere between all of this I kissed my husband good bye and started waiting.
               8 hours of waiting is rather boring, no matter how much of anything you bring along to keep you occupied. Good thing my dearest bailey and my mother in law were with me. We took turns wandering around, found a very nice Terrence garden in the sun with some odd statues, and the yummy cafeteria on the 3rd floor.
Time seemed to pass entirely to slow and the updates didn't come nearly enough, but no news is good news and on schedual 8hrs later the doc came out to tell us how everything went.              
The kidney was stuck back in the ribcage, something that wasn’t foreseen on any of the 20 some c.t. scans done prior, so it was hard to remove. It was also covered in a syrupy coating  that had/has the surgeons baffled. All in all the kidney was very “angry looking”, that’s a direct quote.   Once the kidney was out they were able so to see that it actually sat against the nerve cluster, obviously it was there it’s whole life but the kidney stones and the lipthoipsy operations aggregated both the kidney  and the nerves enough that they cant live that close to each other anymore. There was a small clear fluid cyst on the kidney that wasn’t causing any problems as far as anybody could tell, most martial artist get them, but it was removed anyway. The ureter had a skinny spot in it that we knew about so they dissected the ureter taking that skinny part out. Doing that also saved the surgeon from having to disconnect the ureter at the bladder and making a new hole for it to connect to in the bladder as is the typical procedure, it’s just one less way for infection to take hold. Once the kidney was put into its new home in the pelvis just right of the belly button and about an inch below it was hooked up and started making urine again. Another direct quote, “it got happy again.”  Our surgeons were and continue to be amazing.
Shortly after, with bailey at my side I were directed to the room we call home for the next week and continued to wait for the patient.  We waited and waited and waited, finally another hour later Shawn arrived, very groggy, very out of the it. Shawn is on oxygen, has a central line in his neck, 9 inch incision, drain tube coming out of his belly, back up iv’s in each arm, the sight where the internal blood pressure monitor was located, urine catheter, and leg squeezer cuff on his legs that squeeze his legs to help promote blood circulation. We have known from past operations that Shawn doesn’t do well with anesthesia but we had been told that every precaution would be taken to ensure minimal amounts of sickness after surgery. Right. The more Shawn woke up the sicker he got, ever actually throwing up but lots of dry heaving and needing to throw up. So I hand over my car keys to Bailey, and unexpectedly stayed the night
The nursing staff was good to us coming in every hour to cheek on us, we thought maybe it would all pass but… at the 1am check, no sooner does the nurse come in and leave like 3 minutes later Shawn shoots strait up and start dry heaving again. He tried the green nasty tasting swabs and water but it made him gag and dry heave more. He then ripped off his oxygen and declared it made him claustrophobic along with the, well everything. I stopped him form pulling everything out and called the nurse. She came back with more nausea meds. When I asked her about some anxiety meds she argued with me saying she had to call the doctor for something like that and that this would all pass. About that time I look over and Shawn is ripping off the leg squeezers. The nurse had a fit telling us that they are the difference between life and death after surgery. I know I work in a hospital I know, I argued that there were making him claustrophobic and we needed to do something about that. She said she wasn’t calling the doctor and we needed to deal. Needless to say the oxygen never went back on and he went through the night with only on squeezer.
At 7am shift change the new nurse argued again that we had to have the leg things on all the time until Shawn was walking at least 3 times a day. Shawn said alright we are walking. The nurse said no. Shawn said yes.  So we walked. 8 hours after kidney transplant surgery and my husband is up walking the halls just so he didn’t have to wear the leg things. When the nurse returned him to bed she offered the pain pump button to Shawn. He said no.
The week passed in a blur of sever nausea, to the point that the docs didn’t know how to control it. They were concerned that all the fluids, received by IV only, were coming out as fast as they were going in; if it kept up they were talking about a feeding tube just so that Shawn was receiving proper nourishment. Surgically Shawn was perfect. His kidney was making good urine. All the levels cheeked were perfect. He was walking 3 times a day, not using the pain pump, they were rather impressed actually. The urine cath came out early, he was doing remediably well.
On day 3 the doc said alright eat, if it’s going to come up its going to come up, just make sure that whatever it is taste good coming up.
On day 4 the anesthesiologist came in declaring “acupuncture!”  apparently they have had success with two wrist points  for years and a few anesthesiologists just completed a general acupuncture course giving them a broader range of points to use. She used all of them on Shawn. The miracle is that they worked! Almost instantly the nausea was gone. He was eating and alert and chatting with everybody. Not comatose and throwing up every half hour. He was able to have the central line come out with was huge because apparently an i.v. in your neck isn’t fun, who knew? Later that evening however, Shawn coughed a deep gaging cough that triggered his over active gag reflex and were back to throwing up all the time.
Day 5 exhausted not knowing what to do anymore, the surgeon told us we could leave if only Shawn could hold down food. Shawn said he wanted to leave the hospital stay and being cooped up in the unit was making him crazy and messing with him. He was still feeling claustrophobic and needed out. The surgeon said oh you’re feeling that way I had no idea you should have told the nurse she could have had us order something for that anxiety.  YOU THINK!!! WE DID!!!! 4 DAYS AGO!!!!! With new drugs ordered, breakfast ordered and hopes of going home we started day 5. We were home 12 hours later resting in our own home.












The week was such a testimony builder for me at least. Between all of the people praying for us and the priesthood blessing we received before and during the operation and hospital stay. I felt selfish calling on so many people to help us and pray for us, I felt a little like I was abusing the power of prayer and the priesthood, then it was pointed out to me  that I was simply acting on faith and isn’t that what we are to do in times like these? My thanks and love goes out to all of those we called upon to pray for us, without your love and faith we wouldn’t have come so far in such a short amount of time.

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